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Nine-year-old Evan Cousineau was a vibrant three-sport athlete when he was diagnosed with a genetic metabolic disease. Our lives were turned upside down on May 1, 2007 when we were told that Evan had NO HOPE. Because of our "Fight for Evan", we now fight for every patient and family in need by raising awareness and helping educate the nation about donation in all capacities, so we all have HOPE!!
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> All Events
Now on the Registry...
The total number of donors
registered through
Be A Hero, Become A Donor Drives
from June 7, 2007 -
until April 30, 2012
~ 16,323 !
May 3 DKMS Marrow Registry, Madison, WI
Become a Lifesaver
Register as a Bone Marrow Donor
10am-4pm
Library Mall
University of Wisconsin- Madison
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May 5 DKMS Marrow Registry, Aliso Viejo, CA
11th Annual International Festival
Soka University
1 University Drive
Aliso Viejo, CA
10:30am - 5:30pm
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May 8,9,10 DKMS Marrow Registry, Riverside, CA
UC- Riverside
Become a Lifesaver
Register as a
Bone Marrow Donor
9am-6pm
Upper Patio and
Bell Tower
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May 26-27 DKMS Marrow Registry, Calabasas, CA
Malibu Hindu Temple
for Ankush
9:30am - 2pm
1600 Las Virgenes Canyon Road,
Calabasas,CA,91302
May 19 DKMS Marrow Registry, Rockford,MN
Join Us for a Fun-Filled
Event for the Whole Family!
The INAUGURAL
Blair’s Tree of Hope 5k Run/Walk
Check-in Start: 7:30 am
Race Time: 9:00 am
Lake Rebecca Park Reserve
9831 Rebecca Park Trail
Rockford, MN 55373
Pre- and Post-race Food
and Refreshments
Fun Activities for all ages!!
May 22 DKMS Marrow Registry, Walnut, CA
MT. SAN ANTONIO COLLEGE
1100 N. GRAND AVENUE,
WALNUT, CA 91789
9am-4pm
Natural Science Patio
(outside Building 60)
May 24 Blood Drive & DKMS Marrow Registry, Tomah, WI
First United Methodist Church
1105 Butts Ave.,
Tomah, WI 54660
11am - 5pm
May 26 DKMS Marrow Registry, San Clemente, CA
Hawaiian Surf Club of San Onofre,
21st Annual Polynesian Festival and Luau.
10am -10pm,
Registry will be held
10am-4pm
San Clemente Community Center
100 N. Calle Seville, San Clemente CA
May 29 - San Diego Blood Bank Blood Drive & Marrow Registry, San Clemente, CA
San Clemente High School BAHBAD Club
In the Triton Center
700 Avenido Pico,
San Clemente 92673
8:30am to 1:00pm
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Cord blood donation surges as hospitals launch public collection programs
When Amalia Kessler was pregnant with her first child, Stella, in 2008, she knew she didn’t want to waste the baby’s valuable umbilical cord blood, which can be a life-saving source of stem cells used to treat cancer and other diseases.
Aquatics center provides reminder of family's loss, hope
Entrance to San Clemente’s new swim complex is named the Evan Cousineau Reception Lobby after a 9-year-old water-sports enthusiast who died in 2007 of complications from a rare genetic disorder. His family is the driving force for Be a Hero, Become a Donor, a foundation that aims to save lives through donations of blood, marrow, cord blood, organs and tissue.
San Clemente High School BAHBAD Club Honors Teacher
The San Clemente High School Be A Hero, Become A Donor Club
will hold the annual "In-SPEAR-ation" Blood Drive and Marrow Registry,
on Tuesday November 29th in honor of instructor Jeff Spear.
The drive begins at 8 a.m. at San Clemente High School.
From the Sun Post News:
LOCAL MOM TO SPEAK San Clemente’s Gina Cousineau, who lost her son Evan to a genetic disorder in 2007, has been invited to tell her family’s story at the Newborn Screening and Genetic Testing Symposium. The event was sponsored by the Association of Public Health Laboratories and the U.S. Centers for Disease Control and Prevention.
Moderators – Fred Lorey, California Department of Public Health
and Jill Levy-Fisch, Save Babies Through Screening Foundation
Parents and Adult Patient Panel
• Gina Cousineau, A Mother’s Perspective
• Katie Janzen, SCID - Save Children Inform Doctors
• Kelly Jellin, Luck
• Cindy Wyvill
Since Evan’s death, Cousineau has launched Be a Hero, Become a Donor, an organization promoting marrow, organ and blood donation. She said a new goal is to promote newborn screening for ALD, the disorder that took her 9-year-old son.
Paint it Forward with OPI and DKMS
Stem cell storage can put lives at risk.
The growth of commercial cord blood banking was ‘‘encouraging a culture of maternal guilt’’ and driving many women to have the costly procedures with few proven clinical benefits, the Irish Stem Cell Foundation has warned.
It said the health of mothers and babies could be jeopardised during the collection of umbilical cord stem cells for storage by private companies, which were charging about €1,700 for storage, in addition to ongoing storage fees.
Big News: June Newsletter from Be A Hero Become a Donor Foundation
Dying teen's 'bucket list' goes viral
By Rosa Golijan Alice Pyne,
a 15-year-old with terminal cancer, recently made a simple blog on which she wanted to document how precious the time she has with her family and friends is. She called it "Alice's Bucket List" and included notes on the things she hoped she could do before her illness got the better of her.
Check out Alice's blog here...
Marrow Miracle Saves Young Boy's Life
Check out our May Newsletter...
Join BAHBAD Facebook Page
"Like" us and we will show up in your newsfeed so you can see our lifesaving efforts
BAHBAD Donor writes letter to patient at 1 year anniversary
Andy Gausepohl,
medical student at USC,
shares his thoughts with
patient he gave life to.
BAHBAD Donor Match Shares!!
College baseball coach donates kidney to player
Your baby can save a life
Together We Can Make A Difference
Savannah's dream
“Her dream was to have her own organic ranch some day,” Sachen said. “She was an incredible kid. She was such a wise old soul, very intelligent.” Sachen, of Aliso Viejo, created a foundation called Savannah's Organic Ranch in his daughter's honor and has been planting organic gardens at Orange County schools in her name ever since.
Read all about it here:
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The Be A Hero Become A Donor Foundation
is proud to announce its partnership with
DKMS Americas
as their "Ambassadors to the West".
Go to GetSwabbed.org today
to join the marrow registry
Select "Be A Hero Become A Donor"
from the "How did you hear about us"
menu on the sign up form -
so we can see the effect we are making together. |
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